tag:blogger.com,1999:blog-3222424582316030902.post2596402196556704792..comments2022-10-14T07:02:30.029-07:00Comments on Let The Journey Begin: Scatterbrained thoughts on lifeJosh Butlerhttp://www.blogger.com/profile/07996495999826911282noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3222424582316030902.post-39610116071701341592011-09-01T18:37:01.375-07:002011-09-01T18:37:01.375-07:00Josh,
I never thought much about ALS until my mom ...Josh,<br />I never thought much about ALS until my mom was diagnosed in October of 2009...like you it began with progressive weakness in her right hand that started in late 2008. Doctor after doctor and no answers...a pinched nerve, carpal tunnel syndrome, etc. Once diagnosed, the course of her disease was very rapid. In December of last year we were no longer able to leave her alone and she moved in with my sister. We cared for her together until her death in June. She was 71 years old. ALS is a cruel, devastating disease because as your body goes, you mind stays alert as ever. She refused any life saving measures such as a feeding tube or a tracheostomy, as well as being involved in any clinical trials. I wish you luck with your trial and I hope you are fortunate enough to receive the drug.<br />Should you ever have any questions or concerns I can help you with, please feel free to call me. I live in Santa Fe still, and graduated in 1976. I don't think I know you, but possibly know your parents?<br />Ja Ruble Lowry jalowry58@yahoo.comJahttps://www.blogger.com/profile/08516539520410277419noreply@blogger.comtag:blogger.com,1999:blog-3222424582316030902.post-18272843806001009842011-09-01T18:35:51.347-07:002011-09-01T18:35:51.347-07:00This comment has been removed by the author.Jahttps://www.blogger.com/profile/08516539520410277419noreply@blogger.comtag:blogger.com,1999:blog-3222424582316030902.post-29164171650616316262011-06-12T19:10:26.131-07:002011-06-12T19:10:26.131-07:00Good Luck to you Josh, I hope and pray that this r...Good Luck to you Josh, I hope and pray that this really works out for you and that the docs do find something that will work. My thoughts and prayers are always with you.<br /><br />deus voloAnonymousnoreply@blogger.com